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Cymraeg

Tenovus funding for patient-centred cancer genetics research at Cardiff University

22 January 2009

Tenovus, the cancer charity in Wales, has announced continued funding for Cardiff University’s Cancer Genetics Research team, on projects which will raise awareness of inherited cancer and improve services for those living with the disease in Wales.

The funding is for £137,000 per annum for the next three years and will allow the Cancer Genetics Research team, led by Dr Rachel Iredale and Professor Jonathon Gray at the University’s School of Medicine, to work closely with Tenovus and the Cancer Genetics Service for Wales (CGSW) which is part of the All Wales Medical Genetics Service.

The research projects will explore alternative ways of meeting the information and support needs of people concerned about cancer and will help improve the clinical care of individuals with cancer, or at risk of inherited cancer, and their families across Wales.

One project will see the creation of Digital Storybanks. Patients will be filmed telling the story of their journey with the Cancer Genetics Service - from being asked about their family history, going through genetic testing, receiving the news they are at risk, to on-going support and counselling. The stories will be stored as podcasts available to help other patients embarking on the same process.

A second project will see the establishment of a Patient Panel for genetic cancer services in Wales. Patients will meet on a regular basis to discuss what they like and dislike about the present service, with a view to making improvements.

Dr Ian Lewis, Research Manager at Tenovus said: "This initiative is the culmination of ten years collaboration between our two organisations and clearly demonstrates how Tenovus continues to support a vital, varied and exciting portfolio of research."

Professor Jonathon Gray, newly appointed Professor for Healthcare Improvement at Cardiff University, said: "There is considerable congruence between our research and Tenovus in our passion for innovation and our desire to develop unique services that represent the views of patients. Helping people to come to terms with the genetic risk of cancer is a difficult and sensitive area, and these new research projects will help services in Wales respond more precisely to patients’ needs."

Notes to Editors

Cardiff University

Cardiff University is recognised in independent government assessments as one of Britain’s leading teaching and research universities and is a member of the Russell Group of the UK’s most research intensive universities. Among its academic staff are two Nobel Laureates, including the winner of the 2007 Nobel Prize for Medicine, Professor Sir Martin Evans.

Founded by Royal Charter in 1883, today the University combines impressive modern facilities and a dynamic approach to teaching and research. The University’s breadth of expertise in research and research-led teaching encompasses: the humanities; the natural, physical, health, life and social sciences; engineering and technology; preparation for a wide range of professions; and a longstanding commitment to lifelong learning.

Visit the University website at: www.cardiff.ac.uk

Tenovus

Tenovus is a charitable organisation committed to the control of cancer through: quality research, prevention/education, counselling and patient care. All our activities are designed to ensure the fulfilment of this mission in accordance with best practice. As well as our research programmes, Tenovus is committed to funding support and counselling services for cancer patients and their families through their Cancer Support Team of counsellors, welfare rights advisors and social workers and through the Tenovus Freephone Cancer Helpline, 08 08 808 10 10. www.tenovus.com

Cancer Genetics Service for Wales

The Cancer Genetics Service for Wales is part of the All Wales Medical Genetics Service which provides specialist genetic services to individuals and families with, or concerned about, genetic conditions. The service is made up of clinical and laboratory services which together provide medical genetics services to the population of Wales. Cardiff and Vale NHS Trust hosts the AWMGS at the University Hospital of Wales (UHW), Heath, Cardiff. Specialist consultant geneticists, doctors and genetic counsellors provide genetic services in all the main hospitals throughout Wales. Researchers are employees of Cardiff University www.cardiff.ac.uk

For further information contact:

Dr Ian Lewis, Tenovus, Tel: 029 2076 8850, e-mail: Ian.Lewis@tenovus.com

Dr Rachel Iredale, Institute of Medical Genetics, Tel: 029 2074 8925, e-mail: Rachel.Iredale@cardiffandvale.wales.nhs.uk

Professor Jonathon Gray, Cardiff University School of Medicine, Tel: 029 2082 7653, e-mail: jgray@fellows.ihi.org

Stephen Rouse, Public Relations Office, Cardiff University, Tel: 029 2087 5596, e-mail: RouseS@cardiff.ac.uk