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22 January 2009
Tenovus, the cancer charity in Wales, has announced continued funding for the University’s Cancer Genetics Research team, on projects which will raise awareness of inherited cancer and improve services for those living with the disease in Wales.
The funding is for £137,000 per annum for the next three years and will allow the Cancer Genetics Research team, led at the School of Medicine by Dr Rachel Iredale and Professor Jonathon Gray, to work closely with Tenovus and the Cancer Genetics Service for Wales (CGSW) which is part of the All Wales Medical Genetics Service.
The research projects will explore alternative ways of meeting the information and support needs of people concerned about cancer and will help improve the clinical care of individuals with cancer, or at risk of inherited cancer, and their families across Wales.
One project will see the creation of Digital Storybanks. Patients will be filmed telling the story of their journey with the Cancer Genetics Service – from being asked about their family history, going through genetic testing, receiving the news they are at risk, to on-going support and counselling. The stories will be stored as podcasts available to help other patients embarking on the same process.
A second project will see the establishment of a Patient Panel for genetic cancer services in Wales. Patients will meet on a regular basis to discuss what they like and dislike about the present service, with a view to making improvements.
Dr Ian Lewis, Research Manager at Tenovus said: "This initiative is the culmination of ten years collaboration between our two organisations and clearly demonstrates how Tenovus continues to support a vital, varied and exciting portfolio of research."
Professor Jonathon Gray, recently appointed Professor for Healthcare Improvement by the Schools of Medicine and Social Sciences and the Wales Centre for Health, said: "There is considerable congruence between our research and Tenovus in our passion for innovation and our desire to develop unique services that represent the views of patients. Helping people to come to terms with the genetic risk of cancer is a difficult and sensitive area, and these new research projects will help services in Wales respond more precisely to patients’ needs."
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